Current senior caretaker coach Grant Toms has a special little girl in his life who he wishes you to meet.
Abbey was born on the 4th of November 2008 , at only 7 days old we noticed a very small twitch in her right leg. We didn't think much of it straight away but after about 2 hours it increased. We honestly still didn't think it was anything too serious but decided to take her to emergency.
As soon as we arrived the triage nurse took us into a small room and straight away Abbey twitched. She scooped up our baby girl very quickly and said "she is having a seizure, follow me!"
Throughout the night she continued to have seizures, they tried many medications to stop them, they finally did stop around 5am. We were transferred to Monash Clayton that morning where she had a MRI.
It showed she had partial agenesis of the corpus callossum. In Abbey's case her corpus callossum had not grown to its full size at the front and at the back it was completely missing.
After her diagnosis we were still unsure of how it was going to affect her. About 6 months old we noticed she wasn't meeting the usual milestones of a healthy baby. Abbey's pediatrician could not tell us what Abbey's future may hold as her condition is rare and cases vary,
to start off with he organized her to have regular Physio and O.T sessions at the hospital.
At the age of 1 she still physically had the movement of a three month old, no head control and very little movement in her limbs.
We continued with her therapy, now at an Early Intervention program.
At home we have a standing frame, walking frame for weight baring and she also has a special wheelchair.
Now almost 4, Abbey is very happy little girl and is always full of smiles and giggles, she has not had another seizure, she has improved head control and has much more movement in her limbs. Abbey still cannot sit by herself, roll, speak or feed herself and completely depends on us.
Abbey now attends a special developmental school for 3 hours 3 times a week which she loves!
We are now preparing to buy and modify a car so we can wheel Abbey straight from the house to the car as she is getting very heavy and it's starting to take a toll on our bodies.
We just adore our special little girl, she brings so much joy to us, our family and friends and although she has only shown little improvements so far we are very positive she will still have a bright future.
If you wish to help make a difference to Abbeys life please make a small donation to the tins by the bar and canteen
Last Modified on 03/08/2012 12:13